Monday, May 25, 2015

Logans Story Part 2


Logan receiving a treatment.


So Logan continued on with receiving his treatments every month,and blood work every week for 1 1/2 years. We found out we were expecting about 6 months into Logans treatments,we definately wanted another baby,but were planning after he was finished. But thats not how it happened. But we were excited to have another baby and for Logan to have a sibling. I was also trying to potty train around when Logan was 3,it was difficult for him because the Chemotherapy would come out in his urine,which I couldnt have contact with,so i always wore gloves.

Logan would receive his Chemotherapy and then he would have to have IV fluids for like 12 hrs. So he had to pee alot. The IV fluids helped wash the Chemotherapy out of his body.But I eventually got Logan potty trained right at 3 yrs old. He did wonderful. I couldnt change his diapers bc of Chemotherapy meds were toxic to the baby in my belly, if I came in contact with it. So the nurses helped me out until I got him potty trained. The nurses were AMAZING!! Ill get more into that in the next part.

Anthony and I had just gotten married 3 months before we found out Logan had a brain tumor,and had to do Chemotherapy. We clinged to eachother during this difficult time in our lives. We had a hard time talking to other people about everything that was going on because it was soo very hard to talk about even for us being husband and wife. I couldnt talk about his cancer without crying. We didnt know if Logan was going to survive,the doctors said there were no guarantees. They said Logan could have long-term effects from Chemotherapy. Like speech problems,mental delays,deveopemental delays,the urologist was really concerned about his speech.

 Logan was talking at 3 years old but it seemed he would forget some of his skills as he was going through the Chemotherapy. Chemotherapy is supposed to kill cancer cells,but the doctors said it can possibly kill brain cells as well. But I really tried hard to work with Logan,because he was the most important to me, to help him get better,and be there every step of the way,and teach him along the way. Even when your child is so sick,you still have to set boundaries and teach them right from wrong.

This whole experience was so difficult,but we were so very thankful Logan did very well with his Chemotherapy. He threw up after his treatments the treatment that had Cisplatin in it,because the side effect is nausea.  Logan slept alot throughout treatments and the time he was at home recovering from treatments. The doctors said Logan had to wear a face mask in the store so he would have a better chance of not getting sick throughout his Chemotherapy,because his white blood cell count,which is your immunity to keep from getting sick were so low,he could get sick very easily,and itd be life threatening, so we chose to keep Logan isolated for most part, because we didnt want to risk him getting Pnemonia,which he was very susceptable to getting. We washed our hands constantly. We wanted our baby to have no further complications.
He was so tired from treatment,and anti nausea meds made him sleepy.


Logan did not feel comfortable with the doctors,he was scared,bc every time he saw them they were poking and prodding at him. I would have taken his place in a heartbeat if I could of. You never want your child to have a complication,but things are not always in your control. Anthony and I wanted kids,we wanted a baby and when we had Logan he was healthy,beautiful,and just perfect in our eyes.  We had big dreams for him,which that hasnt changed. But we never thought about brain tumors or cancer in children.

You dont think about stuff like that,but when it happened we were blown away,there were so many emotions. You are looking to blame someone, I blamed myself,it had to of been something I did while pregnant with him,something I ate. But it wasnt my fault at all. Its just something that happened out of our control. Im just so thankful we found it,because if we wouldnt have things would have ended differently.

Logan was hooked up to IV machine on wheels from the time we arrived to get his Chemotherapy,until we left the hospital,which was 2-3 days each treatment. The IV machine tubing was so short all Logan could do was sit, he didnt have enough lee way to move around much. He didnt understand what the tubing was for,so he would try to run and the needle would come out of his port,so sometimes the nurse would have to re-insert the needle into his port. Which was very hard,it took 3 nurses and myself to hold him to get the needle back in,he really fought hard.

The hospital had helpers that worked for the hospital to come around to hospital rooms and try to do crafts and play games with the children in the hospital,but Logan was feeling so sick most of the time,he didnt care to participate. I would read to Logan and try to color and work with him,and he barely was up for that,the Chemotherapy was really hard on Logan.






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